Episodi

  • Steven's Story

    Steven's Story
    Nov 15 2024
    In this week's episode of the Young Tongues Podcast, we sit down with Steven, a beloved community member and actor who has been experiencing recurrent tongue cancer since 1997. Steven opens up about his journey from his initial diagnosis while working at Walt Disney World, to enduring multiple treatments—surgeries, radiation, and chemotherapy—and the emotional rollercoaster that followed. Steven's story highlights the importance of early detection, the critical role of speech therapy, and the struggle to avoid feeling 'othered' due to health and social anxieties. He delves into the power of community support, sharing how friends and supportive networks have helped him through his darkest moments.

    Hosted on Acast. See acast.com/privacy for more information.
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    1 ora
  • All things Mental Health - Part 2

    All things Mental Health - Part 2
    Nov 8 2024

    In this episode of the Young Tongues podcast, hosts Barbara and Jamie explore the multifaceted experience of 'scanxiety' — the anxiety associated with awaiting medical scan results. They discuss the profound psychological impact and communication challenges surrounding their tongue cancer diagnoses. The conversation incorporates personal anecdotes, revealing how different communication approaches from healthcare providers influence a patient's mental well-being. Additionally, the episode covers coping mechanisms, both involuntary and deliberate, such as physical activities, meditation, and setting public goals. The hosts also highlight the role of support groups, community involvement, and the emotional toll of survivor's guilt. They address the importance of early diagnosis, support during grief, and maintaining personal boundaries within the support community. Moreover, the discussion touches on facing online trolling and the significance of raising awareness about tongue cancer.



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    1 ora e 13 min
  • The Mental Health of it All - Part 1

    The Mental Health of it All - Part 1
    Oct 25 2024
    In this episode of the Young Tongues podcast, Barbara, along with her co-host Jamie, delves into the mental health struggles faced by young tongue cancer patients. They discuss the significant lack of mental health support in cancer treatment plans and stress the need for mental strength and agility. Personal anecdotes shed light on the long-term trauma, everyday challenges, and the importance of maintaining a balanced mindset. The conversation highlights coping mechanisms such as therapy, meditation, and breathing techniques, as well as the profound impact of peer support groups and virtual meetups. The episode addresses the prevalence of depression, anxiety, and PTSD-like symptoms, while also underscoring the importance of seeking professional help. The role of community support and relatable peers in emotional well-being is emphasised, providing a holistic view on navigating life during and after cancer treatment.

    Hosted on Acast. See acast.com/privacy for more information.
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    57 min
  • Mus's Story

    Mus's Story
    Oct 18 2024
    In this insightful episode of the Young Tongues podcast, host Barbara interviews Mus Tarry, a local councillor from Surrey, who shares his personal experience with tongue cancer. Mus recounts his journey from early symptom detection in 2022, through his diagnosis, to undergoing major surgery. The narrative delves into the emotional and logistical challenges faced, highlighting the critical support from medical professionals, his place of work, and loved ones. Mus details the process of preparing for surgery, the intense experience of recovery in the ICU, and subsequent complications that led to multiple operations. Additionally, this episode explores his encounters with chemo-radiation, underlining the physical and emotional toll alongside the importance of maintaining routines and the significant impact of a supportive community. Throughout, Mus's story is one of resilience, determination, and the crucial role of family, healthcare teams, and community support in navigating and overcoming such a profound medical journey.

    Hosted on Acast. See acast.com/privacy for more information.
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    1 ora e 16 min
  • Candi's Story

    Candi's Story
    Oct 11 2024
    In this episode of the Young Tongues podcast, we hear from Candi, a former nurse and police constable, who shares her deeply personal journey with tongue cancer. Candi opens up about her early life, career, and family, leading up to the moment she first discovered something was wrong during a routine dentist visit. She recounts the shock of her diagnosis, the emotional weight of sharing the news with her family, and the grueling medical path that followed, including multiple surgeries and a long hospital stay. Throughout the episode, Candi candidly discusses her recovery process, the physical and emotional changes she has faced, and her determination to find a new sense of normalcy. She also talks about her aspirations to return to work and the ongoing challenges of navigating life as a cancer survivor, offering listeners both insight and hope.

    Hosted on Acast. See acast.com/privacy for more information.
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    1 ora e 6 min
  • Post-Summer Energy: The Duo Is Back!

    Post-Summer Energy: The Duo Is Back!
    Oct 7 2024
    In this episode of the Young Tongues podcast, hosts Barbara and Jamie reunite after an eventful summer break, sharing deeply personal stories and meaningful reflections. Barbara opens up about her trip back home to Switzerland, where she raised awareness for tongue cancer while balancing her role as CEO of the Young Tongues charity. Meanwhile, Jamie recounts the harrowing experience of her family’s evacuation during a California wildfire. Together, they reflect on their journeys as tongue cancer survivors and how these life-changing experiences continue to shape their advocacy, work, and personal growth. Looking ahead, they tease upcoming episodes featuring inspiring interviews with fellow tongue cancer survivors, offering listeners a chance to hear powerful stories from the community and deepen awareness around tongue cancer.

    Hosted on Acast. See acast.com/privacy for more information.
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    1 ora e 4 min
  • Jennifer's Story

    Jennifer's Story
    Aug 30 2024
    In this episode of the Young Tongues podcast, Barbara interviews Jennifer Alexander, a member of the community, who shares her experience with tongue cancer. Jennifer talks about her various diagnoses since her early twenties, her struggles with treatments, and her surgeries. She emphasizes the importance of HPV vaccination for preventing HPV+ oral cancer and shares her experiences in advocating for cancer awareness. The conversation also touches on the psychological impacts of a cancer diagnosis, the stigma associated with HPV, and the importance of not feeling ashamed.

    Hosted on Acast. See acast.com/privacy for more information.
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    55 min
  • Angilee's Story

    Angilee's Story
    Aug 23 2024

    In this episode of the Young Tongues podcast, host Barbara Fountain interviews Angilee Wilkerson about her experience with tongue cancer. Angilee, who noticed something was wrong when her tongue moved to one side, was diagnosed with stage 3 tongue cancer. Despite being given a 40% chance of survival with chemo and radiation, Angilee with the support of ther clinical team opted for a wait and watch approach. Three years out from surgery Angilee is still cancer free. Angilee also discusses her invention, TOUGLES, a device to help tongue cancer survivors eat and improve speech. The episode touches on her recovery journey, the impact of the surgery on her eating and speech, and the emotional and psychological aspects of her choices.


    https://www.tougles.com/


    Hosted on Acast. See acast.com/privacy for more information.
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    30 min